Atlas and Cole are two North Carolina boys living with Hunter syndrome, a rare genetic disorder.
In this national TV story with Investigative TV+, their families share the challenges the boys face as well as the hope they have for the future thanks to the first major advance in the care of Hunter syndrome in 20 years.
The new drug called Avlayah
, is developed by Denali Therapeutics. The initial results of a clinical trial on the drug were published in the New England Journal of Medicine in January 2026.
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