The polycystic kidney disease (PKD) Foundation—the only organization in the U.S. dedicated solely to finding treatments and a cure for PKD recently named Mount Sinai Health System as a PKDF Partner Clinic for their desire to support patients with Autosomal Dominant PKD (ADPKD). The PKDF Foundation has identified fifteen Partner Clinics around the country who will be partnered with clinicians at one of the Foundation's Centers of Excellence to participate in a mentorship program to collaborate on providing specialized care to individuals with ADPKD.
The PKD Foundation recently announced 28 recipients of their Centers of Excellence program for their dedication in bringing a patient-centered approach to ADPKD care. ADPKD is one of the most common, life-threatening genetic diseases in which fluid-filled cysts develop and enlarge in both kidneys, eventually leading to kidney failure.
Through an extensive process in which applications were reviewed by the COE Advisory Group made up of clinicians and patient stakeholders, Mount Sinai Health System was selected along with 15 other clinics nationwide to receive the recognition as PKDF Partner Clinic.
"Creating a brighter future for the PKD community has always been our goal which we can achieve through strong partnerships with clinics like Mount Sinai Health System who are doing the incredible work of bringing a patient-centered approach to ADPKD care," said Chris Rusconi, PhD, Interim CEO and Chief Research Officer of the PKD Foundation. "We congratulate Mount Sinai Health System and look forward to working closely with them to help those affected by ADPKD to find better care, maintain and improve their quality of life, and plan for the future. Together we will ensure better patient outcomes as we move closer to our vision of ending PKD."
"We are very happy to be selected as one of the few designation centers from the PKD foundation. PKD is the most common genetic kidney disease. Both adults and children could suffer from this devastating disease and the treatment is very challenging. Our newly established center could help this group of patients to get most updated treatment and close follow up with expert in this field," said John Cijiang He, MD, PhD, Irene and Dr. Arthur M. Fishberg Professor of Medicine, Chief of the Division of Nephrology in the Department of Medicine at Mount Sinai Health System.
Since 1982, the PKD Foundation, a 501c(3) non-profit, has proudly funded more than 1,300 research projects and leveraged $1.5B in research funds, making them the largest private funder of PKD research. The organization funds basic, translational, and clinical research, nephrology fellowships, and scientific meetings with a simple goal: to discover and deliver treatments and a cure for PKD.
