COLUMBIA, Mo. - Approximately 90% of children diagnosed with a chronic disease now live into adulthood, according to the American Academy of Pediatrics. However, many adolescents who age out of the often nurturing and supportive pediatric health care system struggle to identify a new adult healthcare provider, lack knowledge of their health history or have trouble navigating the complex adult health care system.
To reduce avoidable hospitalizations and ensure young adults with chronic disease continue to seek care into adulthood, researchers at the University of Missouri identified factors that could influence positively health outcomes after transitioning to the adult health care system. They found increasing their confidence in disease self-management could help to ensure a smoother transition as they age out of pediatric care.
"Our objective is to close the gap between the pediatric and adult heath care systems by making the transition as seamless, comfortable and welcoming as possible," said Maureen Varty, a doctoral student in the MU Sinclair School of Nursing. "By working with young adults to help them access care, we can better monitor chronic diseases and prevent complications that could lead to hospitalizations down the road."
Varty added that assisting adolescents with basic health care tasks like identifying a provider, scheduling an appointment, filling a prescription, understanding their health history and differentiating amongst various insurance policies will help them become more self-sufficient as they age and become independent adults.
"It's very common for young adults to not seek out health care on their own because they don't see the value in it," Varty said. "However, routine care is extremely important because an ounce of prevention is worth a pound of cure. By engaging youth earlier in the health care process, we can boost their confidence by giving them the tools they need to be successful later on and live their lives to the fullest extent possible."
Maureen Varty is a doctoral student in the MU Sinclair School of Nursing.
"A systematic review of transition readiness in youth with chronic disease" was recently published in the Western Journal of Nursing Research. This work was supported by the National Institutes of Nursing Research of the National Institutes of Health under Award Number T32NR015426. The content is solely the responsibility of the authors and does not necessarily represent the official views of the funding agency.
