A University of Plymouth academic is working with a European partner to take the next step in improving lives for people with rare diseases.
Dr Konstantin Glebov, Lecturer in Clinical Neurobiology, has established links with a Dutch organisation - the CMTC-OVM association - committed to promoting the welfare of people who experience rare vascular malformations.
Lex van der Heijden, founder and President of CMTC-OVM association, added:
"We are really pleased to be working with the University of Plymouth to improve policy and support for people with rare diseases.
"The CMTC-OVM organisation is currently training patient advocates from all over the world, creating regular informative material (such as videos), is a member of the Chief Experience Officers Council (part of the Dutch Ministry of Health, Welfare and Sport), and active in many other international organisations such as the European Reference Networks.
"We are proud of our impact over the last 25 years, and look forward to working with Dr Glebov to evaluate policy practices for rare diseases in Europe and the UK to see how we can positively impact on more people."
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