Men receiving treatment for prostate cancer often face challenges that extend well beyond the disease itself. A new study led by Sally Sara, Director of Nursing at the Prostate Cancer Foundation of Australia, is exploring how a nurse-led survivorship program can help men better manage the wide-ranging effects of androgen deprivation therapy (ADT).
ADT is one of the most common treatments used to slow the progression of high-risk localised and advanced prostate cancer. It works by reducing testosterone levels, which prostate cancer cells rely on to grow. While the treatment is effective, many men experience significant side effects that can affect their physical health, emotional wellbeing, sexual function and relationships.
"ADT is very effective at slowing tumour growth and extending life," Sally said. "But we also know it can bring a range of debilitating physical and emotional challenges for men. Supporting men through those changes is an essential part of prostate cancer care."
Research has shown that while some programs help manage the physical side effects of treatment, there has historically been far less support focused on psychological wellbeing, education and long-term survivorship needs.
To address this gap, researchers designed a tele-based nurse-led survivorship program aimed specifically at men receiving ADT. The goal was to improve the quality of life and help men feel more confident in managing the challenges that can arise during treatment.
The program was developed using a combination of scientific evidence and patient insight. Researchers conducted a literature review, interviewed men living with prostate cancer, and engaged with healthcare stakeholders to understand what support patients needed most.
"What men told us very clearly is that they want practical information and support," Sally said. "They want to understand what is happening to their bodies, how treatment may affect their lives, and what they can do to stay as well as possible."
The final program included five structured sessions delivered by specialist nurses. Topics included understanding the physical and psychological impacts of ADT, exercise and nutrition, sexual health and intimacy, coping strategies, and practical problem-solving and goal setting.
The program was tested with a group of men as part of a national clinical study.
Early results are promising.
Participants reported that the program was highly valuable, helping them better understand treatment side effects and equipping them to manage their health more confidently. Many men also reported improvements in their mental wellbeing, decision-making and sense of control over their health.
"Education and support can make a real difference," Sally said. "When men feel informed and supported, they are better equipped to manage side effects and maintain their quality of life."
The research also highlights the important role specialist nurses play in supporting men through prostate cancer treatment. Nurse-led programs provide personalised care that combines clinical knowledge with practical guidance and emotional support.
"This study shows how powerful nurse-led care can be," Sally said. "It demonstrates that when we focus on the whole person, not just the cancer, we can significantly improve the experience of men living with prostate cancer."
Researchers hope programs like this could be expanded across healthcare services in the future, helping more men access the support they need during and after treatment.
"Survivorship care is about helping men live well," Sally said. "And that means giving them the knowledge, tools and confidence to navigate life during treatment and beyond.
