There are 63 million people caring for family members with an illness or disability in the U.S. That translates to one in four adults devoting their time to helping loved ones with things like transportation, meals, prescriptions, and medical appointments.
Caregiving exacts a huge toll on the people responsible, and ianacare is seeking to lessen the burden. The company, founded by Steven Lee '97, MEng '98 and Jessica Kim, has built a platform that helps caregivers navigate available tools and local resources, build a network of friends and family to assist with everyday tasks, and coordinate meals, rides, and care shifts.
The name ianacare is short for "I am not alone care." The company's mission is to equip and empower the millions of people who perform a difficult and underappreciated role in our society.
"Family caregivers are the invisible backbone of the health care system," Lee says. "Without them, the health care system would literally collapse, but they are still largely unrecognized. Ianacare acts as the front door for family caregivers. These caregivers are often thrust into this role untrained and unguided. But the moment they start, they have to become experts. Ianacare fills that gap."
The company has partnered with employers and health care providers to serve more than 50,000 caregivers to date. And thanks to a partnerships with organizations like Elevance Health, the American Association of Retired Persons (AARP), and Medicare providers, its coordination and support tools are available to family caregivers across the country.
"Ultimately we want to make the biggest impact possible," Lee says. "From a business standpoint, the 50,000 caregivers we've served is a huge number. But from the overall universe of caregivers that could use our help, it's relatively small. We're on a mission to help all 63 million caregivers."
From ad tech to ianacare
As an electrical engineering and computer science student at MIT in the 1990s, Lee conducted research on early speech-recognition technology as part of the Spoken Language Systems group in MIT's Computer Science and Artificial Intelligence Laboratory (CSAIL).
Following graduation, Lee started a company with Waikit Lau '97 that optimized video advertising placement within streams. The company has gone through several mergers and acquisitions, but is now part of the public company Magnite, which places the ads on platforms like Netflix, Hulu, and Disney+.
Lee left the company in 2016 and began advising startups through programs including MIT's Venture Mentoring Service as he looked to work on something he would find more meaningful.
"Over the years, the MIT network has been invaluable for connecting with customers, recruiting top talent, and engaging investors," Lee says. "So much innovation flows out of MIT, and I've loved giving back, especially working alongside [VMS Venture Mentor] Paul Bosco '95 and the rest of the VMS team. It's deeply rewarding to share the best practices I've learned with the next generation of innovators."
In 2017, Lee met Kim, who was caregiving for her mother with pancreatic cancer. Hearing about her experience brought him back to his own family's challenges caring for his grandfather with Parkinson's disease when Lee was a child.
"We realized the gaps that existed in caregiving support three decades ago still exist," Lee says. "Nothing has changed."
Officially launched in 2018, ianacare may seem far-removed from speech recognition or ad technologies, but Lee sees the work as an extension of his previous experiences.
"In my mind, AI got its start in speech recognition, and the intelligence we use to surface recommendations and create care plans for family caregivers uses a lot of the same statistical modeling techniques I used in speech recognition and ad placement," Lee says. "It all goes back to the foundation I got at MIT."
The founders first launched a free solution that allowed caregivers to connect with friends and family members to coordinate caregiving tasks.
"In our app, you can coordinate with anyone who's interested in helping," Lee says. "When you share a struggle with a friend or co-worker, they always say, 'How can I help?' But caregivers rarely go back to them and actually ask. In our platform, you can add those people to your informal care team and ask the team for help with something instead of having to text someone directly, which you're less likely to do."
Next, the founders built an enterprise solution so businesses could help employee caregivers, adding features like resource directories and ways to find and select various caregiving tools.
"An immense amount of local resources are available, but nobody knows about them," Lee says. "For instance, every county in the country has an Area Agency on Aging, but these agencies aren't marketing experts, and caregivers don't know where to get guidance."
Last year, ianacare began working with AARP and health care providers participating in the nationwide GUIDE model (for "Guiding an Improved Dementia Experience") to improve the quality of life for dementia patients and their caregivers. Through the voluntary program, participants can use ianacare's platform to coordinate care, access educational resources, and access free respite care up to $2,500 each year.
Lee says the CMS partnership gives ianacare a pathway to reach millions of people caring for dementia patients across the country.
"This is already a crisis, and it will get worse because we have an aging population and a capacity-constraint in our health care system," Lee says. "The population above 65 is set to double between 2000 and 2040. We aren't going to have three times the hospitals or three times the doctors or nurse practitioners. So, we can either make clinicians more efficient or move more health care into the home. That's why we have empower family caregivers."
Aging with dignity
Lee recalls one family who used ianacare after their son was born with a severe disease. The child only lived eight months, but for those eight months, the parents had meals delivered to them in the hospital by friends and family.
"It was not something they had to worry about the entire time their son was alive," Lee says. "It's been rewarding to help these people in so much need."
Other ianacare users say the platform has helped them keep their parents out of the hospital and lessen their depression and anxiety around caregiving.
"Nobody wants to die in a hospital, so we've worked hard to honor the wishes of loved ones who want to age in the home," Lee says. "We have a lot of examples of folks who, if our support was not there, their loved one would have had to enter a nursing home or institution. Ianacare is there to ensure the home is safe and that the caregiver can manage the care burden. It's a win-win for everybody because it's also less costly for the health care system."
