New Center for Myotonic Dystrophy Research

The RNA Institute

, under the direction of Dr. Andrew Berglund, has been awarded SEED funding from The Marigold Foundation to help develop a Center for Myotonic Dystrophy that will serve as a hub for academic, clinical and industrial collaborative partnerships to increase research, educational and clinical opportunities in myotonic dystrophy (DM).

Myotonic Dystrophy is the most common cause of adult muscular dystrophy and has a surprisingly high prevalence in New York State (~1:2100). Luckily New York State also has a number of leading DM researchers, including our Institute Director, Dr. Andrew Berglund. Utilizing a growing core of Institute researchers with over 4 decades of combined experience in the DM field, the team is laying the foundation for a New York Center for Myotonic Dystrophy Research. While still in the planning and development stages, the Center’s goal will be to serve as an internationally recognized research and training hub for scientific discovery, clinical advancement and therapeutic development in DM. The Institute already holds several major federal and private grants supporting DM research and philanthropic support from The Marigold Foundation will help develop the Center in the future.

The Marigold Foundation is a Canadian charity committed to the development of meaningful treatments for orphan diseases, particularly myotonic muscular dystrophy.


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